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Any ladies out there been diagnosed with lipedema/lipeodema?

Ladies,

Wondering if any of you out there have been diagnosed with lipedema/lipeodema? It is the presence of fatty tissue in the legs that can not be lost with diet or exercise. It's genetic, and as of now the only way to get rid of it is surgery (liposuction). I have stage 1 lipedema, and I am beyond frustrated with the size of my legs. Just wondering if any of you ladies out there have the same thing & know what I'm dealing with.
Scarlett
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Yes, I have been dx with lymphadema but doing my own research for the pain, I know I have lipdema.  I am doing self massage to assist drainage and so far so good.  This has really slowed down my stepping.

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This is progressing so badly that now I have trouble walking and getting into my Jeep. 

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Yes - just a few years ago.  Working out helps me maintain my mobility and gain strength

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